Wednesday, August 11th, 2004 11:11 am
Going to try to be quiet-ish for the next few days, as all that's going on in my head is how this medication is making my brain richochet around like a ferrett on acid in a very small box and is making me dizzy - thought-dizzy, not body-dizzy. And also how agitated my body is. Twitch twitch. Like being toxically over-caffeinated. But without actually having any more caffeine than my usual single cup of coffee. Wanting to yell/scream. Wanted to cut last night, but didn't. Be proud!

I have to get through this. I have to get through this. I have to get through this. Because it might get *better*.

It'll just take me, um, at least two months. To stabilize.

But there is not a goddamn thing I can do about that. Two-plus months of this and then maybe no side effects, or minimal side effects.... or running back to Lamictal, do not pass go, do not collect $200, and deal with known side effects.

Fuuuuuck.

This is really unpleasant.

Unpleasant is an understatement.

This is Day Two of 200mg/Lamictal and 500mg/Keppra.

I'm going to be going up to 1,000mg of Keppra.

I am not handling 500 well At All. But then, at 300 Lamictal when I was first building up, I was literally falling down...

Aaaagh.

Anyway. That's really all I can think about. That and Fred the Breast Lump, but hopefully they'll discover on Monday that Fred is benign and I won't have that to worry about.

Just. Really fucking unpleasant.

Understatement.

And that's what's going on in MY world.
Wednesday, August 11th, 2004 08:35 am (UTC)
I'd read a little bit about Keppra back when you first mentioned the chance you'd be switching to it. The side effects are frightening, doll, and I wish there was some way to help you. I know it's completely unrealistic in the offer, but the desire to help is there.

The Lamotrigine has some nasty "rare" side effects, but they're not nearly as common as the Keppra, nor as scary. I read because I wanted to know and I'm glad that you speak of your epilepsy. You're informed and intelligent and honest about your experiences.

Fred will be benign, I have faith in that, because Ethel (my counterpart) was. Just the coincidence in our breast-pet-lump names tells me that Fred will be benign.

You've got my sincerest hope that physical peace finds you, soon. I wish you nothing but health and happiness.

In a completely unrelated 'thing' I'm glad I'm not the only one who spells ferrett with an extra T when not actually speaking about [livejournal.com profile] theferrett... I don't feel as alone.
Wednesday, August 11th, 2004 08:39 am (UTC)
Where'd you read about Keppra? Send me the link! Pretty please?

The Lamotrigine has some nasty "rare" side effects

That's the thing about me... I'm a mutant! I get the rare ones.

And thank you re: the stuff about how I write about my health...

Fred and Ethel - hee!

Geez, I didn't even notice the ferrett/Ferrett thing. Hee! I'll leave it like that, though. Because the image of
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Where'd you read about Keppra? Send me the link! Pretty please?

<i>The Lamotrigine has some nasty "rare" side effects</i>

That's the thing about me... I'm a mutant! I get the rare ones.

And thank you re: the stuff about how I write about my health...

Fred and Ethel - hee!

Geez, I didn't even notice the ferrett/Ferrett thing. Hee! I'll leave it like that, though. Because the image of <theferrett"> going "eeeeee" and hallucinating and ricocheting around a shoebox amuses me.
Wednesday, August 11th, 2004 08:47 am (UTC)
Keppra is difficult to find "side-effects of" unless you look under the name: Levetiracetam. That should help your searches, at least I hope so.

And the Lactimal, I found under Lamotrigine.

I found other stuff when I first was looking, but these two seemed to have the information each of the other sites offered. Yahoo! Health Drug Index rocks my world.
Thursday, August 12th, 2004 07:12 am (UTC)
Thanks!
Wednesday, August 11th, 2004 08:42 am (UTC)
Got enough stress there yet?

Hug, if that's, like, ok with all the frazzlement.

(My dad's name is Fred. But he's got a tumor of his own. So it fits.)
Wednesday, August 11th, 2004 08:45 am (UTC)
Dude. Always stress. Yes. But this is.... a LOT more than usual.

Which ain't fun, because I'm doing a medicine transition so my body will be acting weird, and stress is my primary seizure trigger...

...have I mentioned that I'm getting married in two and a half months? And that I don't have a dress yet, because I keep shrinking?

Hi!

I hope your dad's tumor is benign...
Wednesday, August 11th, 2004 09:08 am (UTC)
Yeah, everything's going on AT ONCE. As usual. You're practically vibratin'. I hope it gets better, but it seems like the kind of situation that Will Take Patience, which is just a pain in the ass.

(My dad's tumor is in fact benign, and I think he's had it for like 6 years now (it's behind his pituitary gland), it's just /I/ only found out about it a WEEK ago. Ahem.)
Wednesday, August 11th, 2004 09:05 am (UTC)
Ugh the torture of medicine side affects. Sometimes the side affects are worse than the disease itself. Hang in there. I hope the side affects pass for you. I have had some meds for my depression that made my brain kind of dizzy too. I hate that feeling.

Congrats on your wedding. I am sure you will get your dress just in time. You have other stuff to worry about right now.

*HUGS*
Wednesday, August 11th, 2004 10:01 am (UTC)
*hugs* sorry this is all happening...

you actually might want to quit the caffeine for a bit...might be to much stimulation on top of everything else. ;)
Wednesday, August 11th, 2004 01:21 pm (UTC)
Song

Keppra made me exploade out of my skin and it never got better.

I hated the stuff.

good luck
Thursday, August 12th, 2004 05:44 am (UTC)
Very much a skin-explodey feeling, yes...
Wednesday, August 11th, 2004 03:48 pm (UTC)
I hope, even if you're taking a break, you'll let us know the results on Monday. Some people worry, even if they don't send emails. At least, I do.
Thursday, August 12th, 2004 05:47 am (UTC)
Not really taking a break as much as making an effort to not bitch about this every five seconds...

I'll definitely post results on Monday... thanks. :)
Friday, August 13th, 2004 03:13 pm (UTC)
*hugs*
Doesn't it suck how everything like this seems to come at once?
I am going through a whole bunch of medical issues, an upcoming operation and medication changes right now as well...
Monday, August 16th, 2004 11:59 am (UTC)
Yee! Luck to you...